AFTER more than a year of planning, a branch of National Autistic Society was set up.
Clare Greaves, whose son, Joseph has the condition, was asked to take up the role by the society as she was one of the most active fund-raisers in the town, and she set about doing this at the end of last year. She officially launched the branch at Worthing, West Sussex, and already has 120 families signed up as members. Clare, 35 said "The aim is we want to be a support group for the parents and children, and it's a way of making friendships.
"You can feel quite alone as a parent of an autistic child. When you get diagnosed, all your friends have children without autism, and you can feel left out because your child is doing different things to other children. We found there isn't much support for you, and this way parents can come along and get advice and they know we've all been through the same thing."
Joseph, eight, was diagnosed with autism when he was two and since then Clare and her family have done various fund-raising events for the charity.
Every year, they organise a sponsored Train Walk along Worthing sea front, as well as other events. The NAS branch in Worthing will be an extension of that work, while also providing support and friendship.
Autism is categorised as a life long development disability that affects how a person communicates with and relates to, other people and the world around them.
It is a spectrum condition, which means that, while all people with autism share certain areas of difficulty, their condition will affect them in different ways. Asperger syndrome is also a form of autism.
She said, "With the cinema club you do not have to worry if the children talk or make noise, which makes it more relaxing. As for the Lego, I don't know a child that doesn't like Lego, and autistic child especially seem to like it. By having the club the children can still feel like they belong to a group and get a chance to play with other children"..
Katarina Hutchings, said, the new branch can only be a good thing, to raise awareness about what autism is.
Her six-year old son, Danko, has autism and she is now on the committee after meeting Clare three years ago on one of the Train Walks."
"There are still not many people who know what autism is, because it is an invisible disability. My son is quite high functioning, and he looks the same as other children, so it's only when we go to packed areas and he can't cope with the noise that we have to explain to people he is like that because of autism.
Some know what it is, and others don't, but it's difficult for people to pinpoint what it looks like because no two children with autism are the same.
Debbie, 44, said, "We want to try and get together as much as we possibly can, and I know there is a plan for summer fun already. If parents talk to each other, they might be able to give each other helpful tips, and it's just sharing that kind of information that makes you feel like you're not alone. We can share information about getting children into schools and other things".
"There is not much help from the hospital and everyone here can give help because they've done it before."
by
Katherine Hollisey-McLean
katherine.hollis@worthingherald.co.uk
It is not easy to speak on autism to others who do not have the experience of the disability, however, with the advancement of science, one can only hope there will be a cure.
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